tag:blogger.com,1999:blog-6368196528602903724.post8669573919984685656..comments2023-08-16T03:02:12.471-07:00Comments on Paper Thin Butterfly Skin... The Story of Our Butterfly Prince: I find myself dreaming...Emilyhttp://www.blogger.com/profile/13389912667756583895noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6368196528602903724.post-16618483760885594262013-04-16T00:18:02.823-07:002013-04-16T00:18:02.823-07:00Hi Emily, you are lucky to have a wonderful family...Hi Emily, you are lucky to have a wonderful family, Gunner is so cute and brave as his name :D, my heart melts for him, I want to kiss his chubby cheeks so bad. I hope that he will get better soon. <br />Sorry for my bad English :)Anonymoushttps://www.blogger.com/profile/11205901100126919543noreply@blogger.comtag:blogger.com,1999:blog-6368196528602903724.post-3739077091979312002013-03-22T10:07:27.279-07:002013-03-22T10:07:27.279-07:00Emily, I can just imagine how painful it must be f...Emily, I can just imagine how painful it must be for you every time Gunner cries at your approach. That has just got to hurt. :( I have heard that some EB moms give anxiety medicine before baths and bandage changes. I can just imagine how his stress level just rises when he knows it is time for a bath. <br /> <br />I am glad the approval for the walker came in and soon you will have proper splints for his feet!! I am sure once Gunner is moving around on his own, he will be a happier boy. It is amazing what independence does for a heart. <br /><br />Praying for you Gunner and Cody that the Lord will carry you through this and I also am praying for a cure for this horrible disease. <br /><br />Blessings,<br /><><child of Godhttps://www.blogger.com/profile/11635805396738062444noreply@blogger.comtag:blogger.com,1999:blog-6368196528602903724.post-28637042018257110522013-03-21T19:33:11.565-07:002013-03-21T19:33:11.565-07:00Dear Emily, Cody and Gunner, I am truly heart brok...Dear Emily, Cody and Gunner, I am truly heart broken for the three of you, as I read this latest update on the daily struggle Gunner has with EB, and the emotional effects it has on you all. I pray our Father in Heaven will heal this horrid disease, and bring you and your family comfort and peace, turning pain and sorrow into sincere joy. Amen. Love and Care from Kerrie. xOxKerriehttps://www.blogger.com/profile/09415168156854751135noreply@blogger.com